Dealing with Celiac Disease in Germany

hi my daughter has just been diagnosed with a server intolerance to gluten. celiac disease. i know it is a personal question but wondered if anyone else has to deal with it in germany.
thanks tracey

all i ever seem to post about is medical probs!!! except for my daughter we are all very healthy really :$

I had never heard of that condition before but having quickly looked it up, it looks like you have your hands full. All I can say is that nature consistently confounds the medical community and you should not always believe what the doctors tell you. Doctors will always give you the worst case scenario to cover themselves and will refuse to give you any kind of hope.

If we had listened to doctors we would have put my daughter through absolute hell (skin grafts, G-tubes, barium swalllows etc). They consistently try to dash our hopes and we just ignore them. And so far we have been totally vindicated. Try to stay positive (I know it can be difficult) - it will rub off on your daughter. And treat her as normal as possible.

Try Yahoo Groups if you want to find people in a similar situation.

the WSJ Europe just did an article on that very thing the other day, seems it fallen off the radar screen in America. You're fortunate (if you can say that) that it is much more recognized here in Europe.

Celiac disease

Someone posted here a few months ago about where to buy gluten free products (answer - in a Reformhaus)

I would agree that, in general, allergies and food intolerances are well understood here.

I am guessing that Celiac disease is what the English know as Coeliac disease, which may help you if you are looking for an English support group/web site. (Don't know if you are English or American but figured it might be helpful).

Found this link maybe of some help.

COELIAC SOCIETY
P O Box 220
High Wycombe
Bucks
HP11 2HY
Tel: 01494 437278
www.coeliac.co.uk

thank you every one i am going shopping with my german teacher, to see what we can find. but to be honist i think she would be better off eating card board. we are hoping that it is celiac disease, because the other possibles are not think able. it has taken 2 1/2yrs operations and 3 of the top consultants in the world to get to this. and now we are fighting against time, as she is 7.4kgs and almost 3 years old. weights less than a 12mth old. and they are now running bloods to check her body is not going to give up.
and if in the next 2mths there is no improvement we have to go back to great ormond street hospital in londan for more tests.
i am going to scan everything you guys have said and also see if there is an english suport group hear that might be able to help as well. but if anyone happens across a nice bit of food thats a treat and it has glutenfrie written on it then post it this way!!!
thanks
tracey

oh and by the way i am english

Could this be of any help?

http://www.dzg-online.de/

The German Coeliac Society (Deutsche Zöliakiegesellschaft - DZG) was founded 1974 and started with 55 members.Today the DZG has about 22,000 members. mailto:info@dzg-online.de

It is in English.

A couple of Bread recipes.

I lived with a lass for 9 yrs, she had a gluten intollerance, We had loads and loads of Rice and vegetable dishes.. was quite a challenge cooking for her.. she was a veggie too which made for more intersting creations.

G

Good luck,

Go shopping in your local Reformhaus (health food shop) where there should be gluten free biscuits and pasta shapes, also bread made from gluten free flour and breakfast cereal made from corn. Also, get a list from your doctor (in German) of all the grain products she should avoid and take this with you.